Well Charlotte has had one week of treatment as of yesterday. She is very tired, but is coping well. She has enjoyed being back at school and seeing her friends. We normally get her to school around lunchtime, so it is good timing, as she prefers quieter activities at the moment, like drawing, reading, friends lego and painting. The other children don't seem to have noticed anything different with her, so thats a relief. It is the only normal thing in her life at the moment, so must be the highlight of her day.
We had the first of the regular PMH Wednesday appointments this week, where everything is checked. Her weight, height, blood pressure and blood count are all the same as last week. So far so good. To do the blood count, the nurse pricks her thumb and then drains the blood into the container. Charlotte was worrying about this one, as she hates needles (like everyone else!). She was trying to be brave and only did a couple of screams. She did admit that it wasn't as bad as the big needles and not as bad as she thought it was going to be. Then asked if she could just do it every second Wednesday instead. Ha ha good try! She is a lot stronger and braver than I thought she would be. To think she would scream like she was being murdered just taking a bandaid off before.
I have been forwarded an interesting website that is for the exact tumor that Charlotte has (thanks Lisa!). It is very upsetting of course, but would be worth reading if you would like a bit more information. There are also a few other ones which I will try to remember the names of below. There isn't a lot of information on this particular tumor as it seems to be put in the too hard basket. If you type the name of it in google there are a few other websites to look at, but I found these ones were probably the most helpful.
www.isabellaandmarcusfund.org.
www.curesearch.org (American one that the hospital advises patients and families look at)
www.cancer.gov (Thanks Sam - tells you a lot of information on the actual tumor)
Once again, thank you all for your support.
